Thursday, January 15, 2009

TOTALLY IN SHOCK BUT THANKFUL

I'm sorry I haven't blogged in awhile. I really did plan on trying to keep up with this, but I guess it is like everything else in life sometimes it has be put on the back burner.
We had a great Christmas with Saul's family. Great food, gifts, conversation and (lol) entertainment.
It was great to have Levi and Zion home for 2 weeks from school. I was a little sad they had to go back. They were really looking forward to returning to school. I am so proud of them both in all of their accomplishments in school. Especially being on the straight A honor roll for 3 six weeks straight.
As for Avva she is my sweet princess that is just as talented and intelligent as her brothers. She just amazes me everyday what she knows and understands.
Some of yall already know what Avva has gone through for the last week. There may be some that don't so I will tell you. This will shock you it did me and Saul. Last week on Wednesday Avva came out from the bathroom with her pants down around her ankles and said "Mama I need to show you something weird." I was not really sure what I was in for. A spider, a spit wad( the boys like to make those and throw them on the ceiling sometimes)or maybe just the fact that her poop was a different color. You never know with a 4 year old. I walk in the bathroom and she showed me the blood in the toilet. I got really scared. I checked her and noticed she was bleeding vaginally. I took her to the doctor first thing in the morning. The doctor was just in shock and said I am just not sure what is going on. We were sent to Waco to the hospital for an ultrasound to find out where for sure the bleeding was coming from and hopefully why. The next morning(Friday) very early I got a call from the doctor and said we think there is a tumor on your daughters right ovary. I just started to cry and almost couldn't finish the the conversation with the doctor. She said we need you to go ASAP to Temple, TX to the Scott & White hospital for further testing and a room is waiting for you and along with 4 doctors. I said did you say room. She said yes Avva will be staying in the hospital til the doctors find out fully what is going on and it is fully treated. So I quickly packed a bag and naturally I forgot a few things. We got there and Saul and I were just beside ourselves. Avva had about every test they could do on someone done on her and she was soooooo brave and soooo good thru it all. There was new faces everyday and she handled that very well too. All the staff and doctors were soo good to her. She had 9 different doctors trying to figure out what was going on. A Pediatric Endocrinologist was called in from Austin. She asked me numerous questions about her about about all of mine and Saul's medical history. She looked at me and said very seriously and said we are pretty sure that there is a tumor on your daughters brain. She please don't worry about this it will be ok. I wanted to say it is not ok this is my baby and your telling me there might be a tumor on here brain. An MRI done on her head and it came back clean and no tumor on her brain. I just fell down and cried and was so thankful. The doctor said we have figured out what is wrong and it is called PRECOCIOUS PUBERTY. This means that her pituitary gland and another gland above that is above that one(can't remember the name) has began to the signal down to the ovaries to begin to produced hormones and to begin puberty. She will be taking shots once a month for the next 6 to 8 years or whenever the doctor decides for her to begin puberty again. The shots will hopefully stop and delay this. There is a chance that it will not. An x-ray has shown that her bones have began to grow because of the hormones and she has 6 year old bones. Remember she just turned 4 DEC 20th. Saul and I are just in shock, but thankful that she doesn't have any tumors(she does tho have cysts on her right ovary, but the doctors at this point is not worried about them). Avva and I spent 4 days in the hospital and very thankful to be home. I saw so many babies and children so much sicker than Avva and made me feel that others do have it worse. Like I said Avva will be receiving shots every month for the next few years until the doctor decides she can begin puberty again. She will be having blood test done every 3 months to make sure her hormone levels are not rising. She will also have x-rays done every 6 months to make sure her bones are growing right and not too fast like that have began to. So please keep Avva and our family in your prayers. If any of you would like to know a little more about this just call me or email me I would be happy to talk further about this. 254-796-4355 or my cell 318-547-9065